Multiple System Atrophy?

[Savak]

Has anyone ever heard or experienced their loved ones or anyone who has gone through this disease?

Apparently this is a very rare neurological disease which occurs in 5-10 out of 100,000 people and is actually even more severe than traditional Parkinson Disease and hence not much information and literature is available on it

 

[DRsohail]

yes have seen patients diagnosed,,,

 

[Taaya]

Yes. Its considered a 'Parkinson Plus' syndrome. Along with the symptoms of Parkinsons (tremor, slow movements, instability), it can cause lightheadedness (as your BP will drop when standing, leading to a high risk of falls) and co-ordination issues (due to damage to the cerebellum).

 

[Savak]

Yes. Its considered a 'Parkinson Plus' syndrome. Along with the symptoms of Parkinsons (tremor, slow movements, instability), it can cause lightheadedness (as your BP will drop when standing, leading to a high risk of falls) and co-ordination issues (due to damage to the cerebellum).

Reading the literature on it online is very scary. It apparently is a more accelerated and painful version of Parkinson's where people at best only live 5 years after diagnosis and maximum ten if they are lucky and that also in not very desirable conditions.

It apparently is so rare and happens in 5 people out of 100,000. My mother has been diagnosed with it and I am trying to learn as much as I can about it and also draw on the experiences of others who have seen a loved one go through it.

A girl whose mother passed away from it after an 8 year struggle reached out to me and it was depressing when she told me about what was to happen next

 

[Itachi]

Reading the literature on it online is very scary.

Don't use Google too much for research purposes especially for medical issues.

Experience makes a big difference in the life of a doctor.

What is written in theory and what could be reality could be very different.

Consult with doctors who could give actual scenario after proper evaluation of the patient.